Thursday, October 31, 2013

Into the light of a dark black night

Happy Halloween!
Day 40 and 41

Weight-880 grams- back under two pounds....
Oxygen- back on the NIPPV (higher level of support)
Feeds- going well!
Disposition- Mysterious



And so it continues.  The past couple of days have been rough.  Again.

I feel like I could probably copy and paste from some earlier blog and you guys wouldn't even know.  We do this song and dance that much I feel.

Prudence kept having more and more episodes.  They increased her caffeine, they gave her the benefit of the doubt.  But this morning her labs showed the ugly foot print of an infection lurking somewhere in her tiny body.  So we are back on antibiotics.  And the higher level of C-Pap is working for now.  She has had fewer and fewer episodes since they switched her NIPPV.  So at least thats heading in the right direction without a breathing tube for now.  We never know what is on the horizon.

It can be so discouraging sometimes and sometimes you wanna beat your head against a wall because of the craziness of i
t all.  We never know what report to expect any more.  If you have had a good couple of days, you start getting nervous about what is getting ready to go wrong.  Serious kids, this is no joke.

However, all being said, its also been a fun couple of days in our family.  Halloween is easily one of my favorite holidays.  Not only are zombies my all time favorite, but I love the sweet innocence of a holiday that revolves around a little mischief and mystery all coated with pumpkiny sugary goodness.  Since becoming a mommy, I think it also reminds me that there are times for a bit of magic in life.  Dressing in something way different and going from house to house where sweet good natured people give you candy and big smiles....sounds plenty magical to me.




Lucy went trick or treating for the first time this year.  And she loved it.  At first we were a little nervous how she was going to feel about it because she can be quite shy.  But a few houses in and she was sold on this getting tons of cookies for very little work.

Then Juan and I went on a date (our dates now are getting to spend an hour at the NICU together).  People who say to have a strong marriage that monthly date nights are a must, well they must not have as much fun as Juan and I do being parents or enjoying our crazy life the way it is.  While we enjoy real dates from time to time, we can have the full impact of a date giggling together over something funny for ten minutes.  Every moment of our time together feels like a date.  Tonight, we dressed Prudence in her halloween tutu and had some fun with her.  She played along nicely and humored her parents.  And we had a blast.


Good Night and happy haunts from micropreemie world!

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