Sunday, October 27, 2013

Look for the girl with the sun in her eyes and shes gone.......

Day 36 and 37
Weight- 900 grams- a drop but still 2lbs so we won't complain
Feeds- Finally adding back extra calories!  Pack on the pounds girl!
Oxygen- low settings on C-Pap- there is talk of a nasal cannula on the horizon
Disposition- determined




Prudence has been astounding us all with how well she is doing.  We are ever so slowly getting the little things down and laying the foundation for bigger things.  While some of it makes us nervous (mostly the nasal cannula- we have been teased by those words before) most of it is starting to make us cautiously excited.  We have our 1 month follow up cranial ultrasound tomorrow just to evaluate the small bleed they found earlier and making sure it is resolving.  Other than that, feed and grow Prudence is the name of the game.

She is so incredibly sweet.  Both of my girls are.  If you haven't met them in person, then you should really want to .  Prudence has this curious and spunky nature.  Nothing or nobody will stop her.  When we get to hold her, I always rejoice in this tiny strong body wiggling around until she finds her comfy spot on my chest.  When she is awake, her eyes roll towards any sound as if she is trying to figure it all out.  And Lucy.  Don't get me started about Lucy.  This girl has the ability to do something completely evil and then make me laugh about it.  They are both my heart, my loves, my joy.  And they teach me more every day about love and faith and joy.  

I had the joy of spending a good amount of time at a Halloween festival with my Lucy.  The fest was to support Capturing Hopes which is an amazing group of photographers who capture the NICU moments free of cost to parents.  These photographers have been trained to make pictures beautiful despite medical equipment, cpap masks, and what not.  It is such a blessing.

Lucy dressed up as Minnie Mouse.  And no I did not go buy a store bought costume.  I bought a little of this here and a little of that there and put together a one of a kind Minnie Mouse costume.  And I have to say, I think she was the cutest kid there.  I might be biased.  But I am probably right......
Lucy loves halloween and all that goes with it.  We got to do all sorts of art activities, sit at the halloween photo booth, and play a few halloween games.  She got to "trick or treat" to the different tables.  And I won a raffle for a basket for baby girl items.  All in all a fun day supporting a really great cause.

Of course here is my plug in for the charities that have affected us directly.  Services like Capturing Hopes or the Ronald McDonald House have been the biggest blessing to us.  People donating time, services, and what not to directly assist NICU families.  If any one is every going to donate money on the behalf of a preemie, call your local hospital, ask to speak to who is in charge of the NICU, and find out what charity programs support them before donating.  The big foundations like March of Dimes are fine, but the smaller more personal ones are what really aides the families of NICU babies and changes it all from a scary, lonely experience into something a bit more inviting and happy.  

It has been a wonderful weekend.  I finally feel like the new normal has set in.  Exhausting, emotional, and absolutely amazing.  Juan and I have learned so much about being a family, being parents, and being married.  

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